Vein Of Galen Malformation 
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Vein Of Galen Malformation 
Support Network

TOGETHER WE CAN.

TOGETHER WE CAN. TOGETHER WE CAN. TOGETHER WE CAN.


Save a life.

  • Home
  • VOGM Families
    • Welcome VOGM Families
    • Resources
    • Get Support
    • Medical Advisory Board
    • Ambassador program
  • FAQ
  • Blog
  • SHOP to Support
  • Get Involved
    • Get Involved
  • About Us
    • About Us
    • Contact Us
  • Our Partners
  • Walk Your Way
  • Medical Disclaimer
  • Bangor Santa Appointments

Making a Rare Condition Feel Less Rare.

Together

WHAT IS VOGM?

WHAT IS VOGM?

WHAT IS VOGM?

A Vein of Galen Malformation (VOGM) is an abnormal arrangement of blood vessels in the brain. It can lead to heart failure and hydrocephalus. VOGMs develop in the first trimester and generally require treatment before the affected child's first birthday. Every VOGM is different.

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OUR MISSION

WHAT IS VOGM?

WHAT IS VOGM?

Our mission is to spread awareness, provide information that can be easily understood by all, and to support VOGM families both financially and emotionally no matter where they are in their journey. With the support and information provided, we hope to make a difficult time a little easier for as many families as possible. New families please click for more info.

VOGM Family info
Together we can

ABOUT US

WHAT IS VOGM?

ABOUT US

This 501c3 non-profit was started by a few parents who connected through the VOGM Facebook groups. We saw a need for accurate information and emotional and financial support for VOGM families and especially those new to the diagnosis. We created this non-profit as a way to alleviate some of the pain and helplessness we felt during our journeys.


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Help Support Our Cause!

Because of donors like you We have been able to provide travel grants to all VOGM families who have applied so far!  We are so grateful to continue our mission of spreading awareness and helping VOGM families get to a specialist for their treatment!

Donate Now

Help Our Cause

Your support and contributions will enable us to provide travel grants for children in need of life saving treatment.

Pay with PayPal or a debit/credit card

Contact us

Learn more about our upcoming events, fundraisers, and more!

Contact Us


Get Involved on Facebook:


Vein of Galen Support Group


Vein of Galen Parents Group

Connect With Us

#vogmsupportnetwork

A girl with Vein of Galen Malformation (VOGM, VGM)
A boy who has Vein of Galen Malformation (VOGM, VGM) walking I front of a mural of a bull.
A Women, who had a Galen Malformation (VOGM, VGM) on her wedding day with her mother.
A one year old boy with VOGM with a feeding tube sitting down, smiling.
Vein of galen Malformation (VOGM/VGM) baby boy smiling, wearing a “little guy” shirt.
Man with Vein of Galen Malformation (VOGM/VGM) in cap & gown at his Oxford University Graduation.
Vein of galen malformation (VOGM/VGM) boy folding a worm.
Vein of Galen Malformation (VOGM/VGM) baby girl peaking out from under a blanket.
Vein of Galen Malformation (VOGM/VGM) boy in his school picture.
Vein of Galen Malformation (VOGM/VGM) baby girl holding red toy.

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