TOGETHER WE CAN.
Save a life.
Making a Rare Condition Feel Less Rare.
A Vein of Galen Malformation (VOGM) is an abnormal arrangement of blood vessels in the brain. It can lead to heart failure and hydrocephalus. VOGMs develop in the first trimester and generally require treatment before the affected child's first birthday. Every VOGM is different.
Our mission is to spread awareness, provide information that can be easily understood by all, and to support VOGM families both financially and emotionally no matter where they are in their journey. With the support and information provided, we hope to make a difficult time a little easier for as many families as possible.
This 501c3 non-profit was started by a few parents who connected through the VOGM Facebook groups. We saw a need for accurate information and emotional and financial support for VOGM families and especially those new to the diagnosis. We created this non-profit as a way to alleviate some of the pain and helplessness we felt during our journeys.
Your support and contributions will enable us to provide travel grants for children in need of life saving treatment.
New Vein of Galen Malformation (VOGM) families - please join our VOGM Facebook groups to directly connect with families like you! The Facebook icon throughout the website links to the largest group (Vein of Galen Support Group), but there are several dedicated VOGM groups. Please checkout all of the groups to find the right fit for your family. We hope to grow our community of volunteers and partners. Think you would be a good fit? Get in touch for more information! You can sign up below to hear from us about upcoming events, new research, and how you can help!