TOGETHER WE CAN.TOGETHER WE CAN. TOGETHER WE CAN. TOGETHER WE CAN.
Save a life.
Save a life.
Making a Rare Condition Feel Less Rare.
A Vein of Galen Malformation (VOGM) is an abnormal arrangement of blood vessels in the brain. It can lead to heart failure and hydrocephalus. VOGMs develop in the first trimester and generally require treatment before the affected child's first birthday. Every VOGM is different.
Our mission is to spread awareness, provide up to date information, and connect families with top VOGM Specialists around the world. We support VOGM families both financially and emotionally no matter where they are in their journey. With the support and information provided, we hope to make a difficult time a little easier. New families please click for more info.
This 501c3 non-profit was started by a few parents who connected through the VOGM Facebook groups. We saw a need for accurate information and emotional and financial support to help VOGM get their baby to a top specialis, especially those new to the diagnosis. We created this non-profit as a way to alleviate some of the pain and helplessness we felt during our journeys.
Because of donors like you We have been able to provide travel grants to all VOGM families who have applied so far! We are so grateful to continue our mission of spreading awareness and helping VOGM families get to a specialist for their treatment!
Your support and contributions will enable us to provide travel grants for children in need of life saving treatment.
Learn more about our upcoming events, fundraisers, and more!