Vein Of Galen Malformation 
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Vein Of Galen Malformation 
Support Network
  • Home
  • Just Diagnosed
    • Welcome VOGM Families
    • FAQ
    • Resources
    • Get Support
    • Ambassador Program
  • Our Stories
    • VOGM Warrior Stories
    • Blog
    • Testimonials
  • Donate and Support
  • SHOP to Support
  • Special Events
    • 2025 Great Galen Gala
    • Walk Your Way
    • Bangor Santa Appointments
    • 2024 Great Galen Gala
    • Infants and Infantry 5k
  • About Us
    • About Us
    • Medical Advisory Board
    • Our Partners
  • Research Grant
  • Contact Us
  • Medical Disclaimer

Our medical advisory Board

Dr. Johanna T. Fifi, MD

Dr. Darren Orbach, MD, PhD

Professor of Neurosurgery, Neurology, and Radiology; Associate Director of Cerebrovascular Center; Site Director of Cerebrovascular Services; Mount Sinai Hospitals


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IR who specializes in Vein of Galen Malformation (VOGM, VGM) at Boston’s children

Dr. Darren Orbach, MD, PhD

Dr. Darren Orbach, MD, PhD

Chief, Neurointerventional Radiology; Co-Director, Cerebrovascular Surgery and Interventions Center; Sage Schermerhorn Chair in Image-Guided Therapy

Associate Professor of Radiology, Harvard Medical School

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Dr Christine Fox, MD MAS

Pediatric vascular neurologist
Director, Pediatric Stroke and Cerebrovascular Disease Center

UCSF Benioff Children’s Hospital San Francisco

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Neurosurgeon in Germany specializing in Vein of Galen Malformation (VGM, VOGM).

Dr. Friedhelm Brassel, MD, PhD

Tomoyoshi Shigematsu, MD, PhD (Dr. Tomo)

Chief of Radiology and Neuroradiology at Sana Klinikum Duisburg (Cologne area, Germany)






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Tomoyoshi Shigematsu, MD, PhD (Dr. Tomo)

Tomoyoshi Shigematsu, MD, PhD (Dr. Tomo)

Tomoyoshi Shigematsu, MD, PhD (Dr. Tomo)

Assistant Professor of Neurosurgery, Neurology, and Radiology at Mount Sinai Healthcare System

Dr Tomo completed his fellowship in Neuroendovascular Surgery under the tutelage of Alejandro Berenstein, MD and is now a partner in his practice.

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Yale professor studying genetic links on Vein of Galen Malformation (VOGM, VGM).

Dr. Kristopher Kahle, M.D., Ph.D.

Tomoyoshi Shigematsu, MD, PhD (Dr. Tomo)

Tomoyoshi Shigematsu, MD, PhD (Dr. Tomo)

Assistant Professor of Neurosurgery and of Cellular and Molecular Physiology; Pediatrics, and Cellular and Molecular Physiology; Director, Neonatal and Congenital Anomaly Neurosurgery, Yale University

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Dr. Walter Molofsky, MD

Dr. Walter Molofsky, MD

Dr. Walter Molofsky, MD


Associate Professor, Neurology; Associate Professor, Pediatrics, Mount Sinai Hospitals



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Adam Rennie, MD

Interventional Neuroradiologist
Great Ormond Street Hospital

London, England

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Dr. Saadi Ghatan, MD

Site Chair, Neurosurgery, Mount Sinai West, Mount Sinai St. Luke's; Associate Professor, Neurosurgery; Associate Professor, Pediatrics; Mount Sinai St. Luke's

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