Vein Of Galen Malformation 
Support Network
  • Home
  • Just Diagnosed
    • Welcome VOGM Families
    • FAQ
    • Resources
    • Get Support
    • Ambassador Program
  • Our Stories
    • VOGM Warrior Stories
    • Blog
    • Testimonials
  • Donate and Support
  • SHOP to Support
  • Special Events
    • 2025 Great Galen Gala
    • Walk Your Way
    • Bangor Santa Appointments
    • 2024 Great Galen Gala
    • Infants and Infantry 5k
  • About Us
    • About Us
    • Medical Advisory Board
    • Our Partners
  • Research Grant
  • Contact Us
  • Medical Disclaimer
Vein Of Galen Malformation 
Support Network
  • Home
  • Just Diagnosed
    • Welcome VOGM Families
    • FAQ
    • Resources
    • Get Support
    • Ambassador Program
  • Our Stories
    • VOGM Warrior Stories
    • Blog
    • Testimonials
  • Donate and Support
  • SHOP to Support
  • Special Events
    • 2025 Great Galen Gala
    • Walk Your Way
    • Bangor Santa Appointments
    • 2024 Great Galen Gala
    • Infants and Infantry 5k
  • About Us
    • About Us
    • Medical Advisory Board
    • Our Partners
  • Research Grant
  • Contact Us
  • Medical Disclaimer

VOGM Support Network - Who we are

We are a group of parents who connected through VOGM Facebook group to offer VOGM support to one another. We saw a need for accurate information and emotional and financial support for VOGM network of families and especially those new to the diagnosis. We created this non-profit as a way to alleviate some of the pain and helplessness we felt during our journeys.

Find out more

Our Board

Mother and founder of vein of galen support network with her son who has vogm.

Marlene Brochu

Marlene Brochu

Marlene Brochu

CEO 

Co-founder

VOGM Parent

Mother and founder of vein of galen malformation support network with her daughter who has vogm.

Lena Spisak

Marlene Brochu

Marlene Brochu

CIO

Co-founder

VOGM Parent

A board member of vein of galen malformation support network and a father of a VOGM chid.

James Brochu

Dr Alejandro Berenstein

Dr Alejandro Berenstein

CFO

COO

VOGM Parent

Dr Alejandro Berenstein

Dr Alejandro Berenstein

Dr Alejandro Berenstein

Professor of Neuroradiology and Radiology
Director of the Pediatric Cerebrovascular Program at Mount Sinai

Pionier of VOGM/AVM treatment 

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