Join the VOGM Support Network in Making a Difference

We’re thrilled about our 5th Annual Walkathon! Join us in achieving our $35,000 goal to assist VOGM Warriors in accessing crucial brain surgery from specialized experts. The Vein of Galen Malformation Support Network is dedicated to raising awareness about VOGM, a rare brain AVM. With October being AVM Awareness Month, it’s the ideal moment to unite, even from a distance, and

TO MAKE A RARE CONDITION FEEL LESS RARE!!

Deliver Vital Medical Assistance: Our primary goal is to help provide access to life-saving medical care to VOGM children. Your contributions will directly contribute to their well-being and health prospects.

Foster a Supportive Network: We have established a robust care network that offers families invaluable resources, guidance, and a sense of community as they navigate the complexities of this journey.

Drive Research and Progress: Your donation helps support research initiatives that drive advancements for VOGM families. This research leads to improved treatments and better outcomes, including in-utero embolization that lowers the likelihood of needing risky surgery at birth! 

Please join our international movement during the last week of October! Turn those walks around your neighborhood, a hike in the mountains, Halloween fun, and other outdoor activities into a way to raise awareness and money for our mission! Get started now by joining a team or a VOGM child and registering for VOGM Walk Your Way!!!

Event Details:

• Date: October 25th - 31st, 2024
• Location: Anywhere in the world!
• Time: Walk at your convenience
• Objective: Raise funds for kids with VOGM and promote awareness

1- Register by clicking the “SIGN UP NOW!” button below! 

2- Pay the registration fee and find your team, or you can start YOUR OWN TEAM.

3- You will then immediately be able to create your fundraising page. You can customize your fundraising page with photos and a personal message or story on why you are doing this walk. 

4. Keep an eye out for a reminder email with your race day bib, and further instructions prior to the walk!

Spread the Word: Utilize the power of social media, emails, and good old-fashioned conversations to spread awareness about our campaign. Share updates on your training, your fundraising progress, and the stories of the children you're walking for.

Fundraising: Walk, run, or roll whenever your schedule allows during that week. Your steps count, and so do your dollars. Encourage your network to donate to your fundraising page. Every contribution, no matter the size, makes an impact. Remember, the more you raise, the more children we can support. 

Walk with Pride: On the designated day, put on your walking shoes and hit the pavement with a heart full of purpose. You're not just walking – you're showing solidarity, empathy, and love for these young fighters. Capture your walk-through photos and videos to share with the community and don’t forget to tag @vogmsupportnetwork and #vogmwalkyourway #veinofgalen #vogm

With over $60,000 raised over the last 4 years we have been able to help hundreds of VOGM children! Helping families get connected with specialists, providing emotional support, providing travel assistance for US/Europe families and fully funding life saving surgeries for VOGM children in under developed countries who must travel over seas for treatment! Because of YOU we are able to help all families who reach out to us and help more and more families each year! Thank you for helping us make a rare condition, fell less rare!