Resources
Frequently Used Second Opinions
Dr. Alejandro Berenstein:
212-241-1305
michelle.sorscher@mountsinai.org
Michelle Sorscher, Clinical Coordinator
Dr. Darren Orbach:
617-919-1379
Kristen.nevins@childrens.harvard.edu
Kristen Nevins, Program Coordinator (free second opinions must be scheduled through Kristen Nevins)
Travel Resources
Angel Flight Soars 770-452-7958
Contact Delta and other airlines directly and ask for Medical Emergency Discounts (usually a 10-15% discount and can be changed without fees)
Request Medical Travel Expense Assistance
Many children with Vein of Galen Malformations (VOGM) travel for treatment due to a lack of experienced providers. The VOGM Support Network raises money to offset travel costs when travel is required for treatment. Treatment includes, but is not limited to, angiograms, embolizations, endoscopic third ventriculostomies (ETV), shunts, and experimental treatments for VOGM related complications.