VOGM Resources
Frequently Used Second Opinions
Top VOGM Specialists in the US:
Dr. Alejandro Berenstein:
212-241-1305
michelle.sorscher@mountsinai.org
Michelle Sorscher, Clinical Coordinator (contact Michelle directly)
Please send imaging to;
Dr Alejandro Berenstein, MD and Michelle Sorscher, CPNP
Cerebrovascular Center, Pediatric Cerebrovascular Program
1450 Madison Avenue, Box 1136
KCC 1-North
New York, NY 10029
Dr. Darren Orbach
Boston Children’s Hospital
Scheduling coordinator
(please contact office directly for free second opinion)
617-919-1379
Megan Gentile: Megan.gentile@childrens.harvard.edu
Dr Darren Orbach Darren.orbach@childrens.Harvard.edu
Nurse Practitioners:
Jen Judge Jennifer.judge@childrens.Harvard.edu
christopher Isibor
Christopher.isibor@childrens.Harvard.
For inutero diagnosis include Kassie and Laurie in emails:
kassie.merrill@childrens.Harvard.edu
laurie.OliverTaylor@childrens.harvested.edu
Please send imaging to:
Department of neurosurgery
Attn: Darren Orbach
Hunnewell 230
300 Longwood Ave
Boston, MA 02115
Europe:
Germany:
Dr Friedhel Brassel
Sana Clinic Duisburg
+49 203 733 2750
France:
Prof George’s Rodesch
Hospital Foch in Paris
+31-1 46 25 26 60
secretary +31-1 46 25 25 26
India:
Dr Srinivasan Paramasivam
Apollo Hospital Chennai
Drsrinivasan_p@apollohospitals.com
Secretary Mr Srikanth
+919840045262
Egypt:
Dr Hassan Farouk
cairo University
Saudi Arabia:
Travel Resources
miracle Flights - 800-359-1711 free flights
Angel Flight East (215) 358-1900 ffree Flights for New England states
Angel Flight Soars 770-452-7958 free Flights from the south
Contact Delta and other airlines directly and ask for Medical Emergency Discounts (usually a 10-15% discount and can be changed without fees)
House
The Ronald McDonald House provides housing for families needing to travel for their child’s medical treatment.
Hospitality Homes Boston
providing housing for families with children at Boston’s Children Hospital.
Contact Marlene at VOGM Support Network for more free housing in the Boston Area.
Request Medical Travel Expense Assistance
Many children with Vein of Galen Malformations (VOGM) travel for treatment due to a lack of experienced providers. The VOGM Support Network raises money to offset travel costs when travel is required for treatment. Treatment includes, but is not limited to, angiograms, embolizations, endoscopic third ventriculostomies (ETV), shunts, and experimental treatments for VOGM related complications.